Go to content
A user with amyotrophic lateral sclerosis contested the lack of access to home support services due to insufficient funds in the intensive home support services program (SISAD).
The life expectancy of a female in her 50s who has this disease is three to five years. The user is currently living at a rehabilitation centre but wants to go home. She is wheelchair-bound and needs help with all her activities of daily living.
The woman’s spouse was having their home adapted to make it accessible to the user under the Residential Adaptation Assistance Program. However, the user also needed home support, so she applied to the health and social services centre (CSSS) in her region.
Her needs were assessed and the SISAD committee approved her application but informed her that she would be put on a waiting list because the budget was depleted.
With a view to improving the quality of home support services delivered by the health and social services centre, the Québec Ombudsman recommended that it:
The health and social services centre agreed to act on the Québec Ombudsman’s recommendations.
Furthermore, given the rapid progression of the user’s disease, the CSSS considered that urgent action was required. Since the user’s spouse agreed with her choices and was offering his entire collaboration, and work to adapt the home was almost finished, it decided to bend the rules and update her service plan.
The result is that the CSSS committed to providing 35 service employment paycheque hours once the adaption work was completed. Although the 35 hours were only part of the services hours required, all of the user’s needs in terms of her daily activities and part of her domestic help needs would be taken care of.
The user is satisfied with the CSSS’s commitment and is confident that she and her spouse can organize the services so that she can live at home completely safely.
If you are interested in the subject of home support, see the investigation report entitled Is Home Support Always the Option of Choice? Accessibility to Home Support Services for People with Significant and Persistent Disabilities.